Online Exclusive Article

Consolation in Conjunction With Incurable Cancer

Ulrica Langegård

Karin M. Ahlberg

end-of-life
ONF 2009, 36(2), E99-E106. DOI: 10.1188/09.ONF.E99-E106

Purpose/Objectives: To increase knowledge of what patients with incurable cancer have found consoling during the course of the disease.

Design: Descriptive, cross-sectional analysis.

Setting: Hospice in western Sweden.

Sample: 10 patients (8 women, 2 men) aged 30-90 years.

Methods: Data were collected through semistructured interviews and analyzed with the constant comparative method of analysis.

Findings: Four categories emerged from the interview data: connection, self-control, affirmation, and acceptance. The core variable of the study was developed and defined as "being seen." To be seen and, therefore, consoled results from experiencing a sense of connection, self-control, affirmation, and acceptance. To be consoled is a step toward increased well-being. When patients feel their suffering is seen and understood by another person, they are filled with relief.

Conclusions: Raising the issue of consolation and what consolation means to the patient is essential. Physical contact is not as important as mental presence. The act of listening is the most important factor when it comes to being seen, and what the nurse communicates is what defines the patient/nurse relationship. Nurses should be clear that they have the time and interest to deal with the patient. In addition, a nurse who is concerned with patients and has the courage to stay with them during difficult situations develops an attitude marked by presence, understanding, and commitment. Creativity, knowledge, and, most of all, courage are needed from the nurse as a caregiver to recognize the patient's need for consolation. Creativity and knowledge are needed to determine what point the patient has reached, and courage is needed to be present with the patient during difficult times. Results show that the caregiver, without having an established long-term relationship with the patient, can still bring consolation to the patient.

Implications for Nursing: Creativity, knowledge, and courage are needed to comprehend and accept a patient's need for consolation. By using simple interventions, the nurse can console the patient with little effort. Words become less important when consolation is done through body language.

Jump to a section

    References

    Alfredsson, E., Wiren, B., & Lutzen, A. (1995). Comfort, a flow of best wishes and well-being. Nordic Journal of Nursing Research and Clinical Studies, 15(1), 34-39.
    Arman, M., & Rehnsfeldt, A. (2006). How can we research human suffering? Scandinavian Journal of Caring Sciences, 20(3), 241-250.
    Arman, M., Rehnsfeldt, A., Lindholm, L., & Hamrin, E. (2002). The face of suffering among women with breast cancer—Being in a field of forces. Cancer Nursing, 25(2), 96-103.
    Back-Petersson, S. (2006). Caring in research and practice—Some nursing aspects. Sahlgrenska Akademien. Thesis. University of Gothenburg, Gothenburg, Sweden.
    Beck-Friis, B., & Strang, P. (2005). Palliative medicine. Stockholm, Sweden: Liber.
    Benzein, E., Norberg, A., & Saveman, B. I. (2001). The meaning of lived experience of hope in patients with cancer in palliative home care. Palliative Medicine, 15(2), 117-126.
    Casell, E. J. (1991). Recognizing suffering. Hastings Center Report, 21(1), 24-31.
    Cohen, S. R., & Leis, A. (2002). What determines the quality of life of terminally ill cancer patients from their own perspective? Journal of Palliative Care, 18(1), 48-58.
    Eriksson, K. (1994). The suffering human. Stockholm, Sweden: Liber.
    Eriksson, K., & Lindstrom, U. (2003). Gryning II: Klirisk vardvetenskap. Vasa, Sweden: Abo Akademi University.
    Glaser, B. (1978). Theoretical sensivity. Advances in the methodology of grounded theory. Mill Valley, CA: Sociology Press.
    Glaser, B. G., & Strauss, A. (1967). Discovery of grounded theory. Strategies for qualitative research. New York: Aldin de Gruyter.
    Halldorsdottir, S. (1997). Caring and uncaring encounters within nursing and health care from the cancer patient's perspective. Cancer Nursing, 20(2), 120-128.
    Hartman, J. (2001). Grounded theory. Lund, Sweden: Studentlitteratur.
    Hermann, C. (2006). Development and testing of the Spiritual Needs Inventory for patients near the end of life. Oncology Nursing Forum, 33(4), 737-744.
    Kuuppelomaki, M. (2003). Emotional support for dying patients: The nurses' perspective. European Journal of Oncology Nursing, 7(2), 120-129.
    Mattson-Lidsle, B., & Lindstrom, U. (2001). Comfort—A concept analysis. Nordic Journal of Nursing Research and Clinical Studies, 3(1), 47-50.
    Meyer, T. J., & Mark, M. M. (1995). Effects of psychosocial interventions with adult cancer patients: A meta-analysis of randomized experiments. Health Psychology, 14(2), 101-108.
    Morse, J. M., Botorff, J. L., & Hutchinson, S. (1995). The paradox of comfort. Nursing Research, 44(1), 14-19.
    National Board of Health and Welfare. (2005). Homepage. Retrieved May 11, 2006, from http://www.sos.se
    Norberg, A., Bergsten, M., & Lundman, B. (2001). A model of consolation. Nursing Ethics, 8(6), 544-553.
    Ohlen, J. (2001). Alleviated suffering. Being in a lived retreat—Narratives from palliative care. Falun, Sweden: Nya Doxa.
    Ohlen, J., & Holm, A. K. (2006). Transforming desolation into consolation: Being a mother with life-threatening breast cancer. Health Care for Women International, 27(1), 18-44.
    Raholm, M. B., & Lindholm, L. (1999). Being in the world of the suffering: A challenge to nursing ethics. Nursing Ethics, 6(6), 528-539.
    Roxberg, A. (2005). Caring and noncaring comfort. Vasa, Sweden: Abo Akademi University.
    Sahlberg Blom, E., Ternestedt, B. M., & Johansson, J. E. (2001). Is good "quality of life" possible at the end of life? An explorative study of the experiences of a group of cancer patients in two different care cultures. Journal of Clinical Nursing, 10(4), 550-562.
    Sheard, T., & Maguire, P. (1999). The effect of psychological interventions on anxiety and depression in cancer patients: Results of two meta-analyses. British Journal of Cancer, 80(11), 1770-1780.
    Siefert, M. L. (2002). Concept analysis of comfort. Nursing Forum, 37(1), 16-23.
    Spiegel, D., Bloom, J. R., Kraemer, H. C., & Gottheil, E. (1989). Effect of psychosocial treatment on survival of patients with metastatic breast cancer. Lancet, 2(8668), 888-891.
    Starrin, B. (1997). Along the path of discovery. Lund, Sweden: Studentlitteratur.
    Strang, S., Strang, P., & Ternstedt, B. M. (2001). Existential support in brain tumour patients and their spouses. Supportive Care in Cancer, 9(8), 625-633.
    Sundin, K., Axelsson, K., Jansson, L., & Norberg, A. (2000). Suffering from care as expressed in the narratives of former patients in somatic wards. Scandinavian Journal of Caring Sciences, 14(1), 16-22.
    Williams, A., & Irurita, V. (2005). Enhancing the therapeutic potential of hospital environments by increasing the personal control of hospitalized patients. Applied Nursing Research, 18(1), 22-28.
    Williams, A., & Irurita, V. (2006). Emotional comfort: The patient's perspective of a therapeutic context. International Journal of Nursing Studies, 43(4), 405-415.
    Younger, J. B. (1995). The alienation of the sufferer. Advances in Nursing Science, 17(1), 53-72.