Supportive Care Needs of Parents of Children With Cancer: Transition From Diagnosis to Treatment

Aitken, T.J., & Hathaway, G. (1993). Long distance related stressors and coping behaviors in parents of children with cancer. Journal of Pediatric Oncology Nursing, 10, 3-12.

Brown, K.A.E., & Barbarin, O.A. (1996). Gender differences in parenting a child with cancer. Social Work in Health Care, 22(4), 53-71.

Buckley, M. (2000). Childhood cancer: Meeting the information needs of families. Paediatric Nursing, 12(5), 22-23.

Cayse, L.N. (1994). Fathers of children with cancer: A descriptive study of their stressors and coping strategies. Journal of Pediatric Oncology Nursing, 11, 102-108.

Chesler, M.A., & Parry, C. (2001). Gender roles and/or styles in crisis: An integrative analysis of the experiences of fathers of children with cancer. Qualitative Health Research, 11, 363-384.

Clarke-Steffen, L. (1993). Waiting and not knowing: The diagnosis of cancer in a child. Journal of Pediatric Oncology Nursing, 10, 146-153.

Clarke-Steffen, L. (1997). Reconstructing reality: Family strategies for managing childhood cancer. Journal of Pediatric Nursing, 12, 278-287.

Cornman, B.J. (1993). Childhood cancer: Differential effects on the family members. Oncology Nursing Forum, 20, 1559-1566.

Dahlquist, L.M., Czyzewski, D.I., & Jones, C.L. (1996). Parents of children with cancer: A longitudinal study of emotional distress, coping style, and marital adjustment two and twenty months after diagnosis. Journal of Pediatric Psychology, 21, 541-554.

Eden, O.B., Black, I., MacKinlay, G.A., & Emery, A.E.H. (1994). Communication with parents of children with cancer. Palliative Medicine, 8, 105-114.

Enskar, K., Carlsson, M., Golsater, M., Hamrin, E., & Kreuger, A. (1997a). Life situation and problems as reported by children with cancer and their parents. Journal of Pediatric Oncology Nursing, 14, 18-26.

Enskar, K., Carlsson, M., Golsater, M., Hamrin, E., & Kreuger, A. (1997b). Parental reports of changes and challenges that result from parenting a child with cancer. Journal of Pediatric Oncology Nursing, 14, 156-163.

Ferrell, B.R., Rhiner, M., Shapiro, B., & Dierkes, M. (1994). The experience of pediatric cancer pain, part I: Impact of pain on the family. Journal of Pediatric Nursing, 9, 368-379.

Fitch, M.I. (1994). Providing supportive care for individuals living with cancer. Toronto, Canada: Ontario Cancer Treatment and Research Foundation.

Goldbeck, L. (2001). Parental coping with the diagnosis of childhood cancer: Gender effects, dissimilarity within couples, and quality of life. Psycho-Oncology, 10, 325-335.

Grootenhuis, M.A., & Last, B.F. (1997a). Adjustment and coping by parents of children with cancer: A review of the literature. Supportive Care in Cancer, 5, 466-484.

Grootenhuis, M.A., & Last, B.F. (1997b). Predictors of parental emotional adjustment to childhood cancer. Psycho-Oncology, 6, 115-128.

Han, H., & Belcher, A.E. (2001). Computer-mediated support group use among parents of children with cancer—An exploratory study. Computers in Nursing, 19, 27-33.

Hoekstra-Weebers, J.E., Jaspers, J.P., Kamps, W.A., & Klip, E.C. (2001). Psychological adaptation and social support of parents of pediatric cancer patients: A prospective longitudinal study. Journal of Pediatric Psychology, 26, 225-235.

Hoekstra-Weebers, J.E.H., Jaspers, J.P.C., Kamps, W.A., & Klip, E.C. (1998). Gender differences in psychological adaptation and coping in parents of pediatric cancer patients. Psycho-Oncology, 7, 26-36.

Jclalian, E., Stark, L.J., & Miller, D. (1997). Maternal attitudes toward discipline: A comparison of children with cancer and non-chronically ill peers. Children's Health Care, 26, 169-182.

LaMontagne, L.L., Wells, N., Hepworth, J.T., Johnson, B.D., & Manes, R. (1999). Parent coping and child distress behaviors during invasive procedures for childhood cancer. Journal of Pediatric Oncology Nursing, 16, 3-12.

Larson, L.S., Wittrock, D.A., & Sandgren, A.K. (1994). When a child is diagnosed with cancer: I. Sex differences in parental adjustment. Journal of Psychosocial Oncology, 12, 123-142.

Levi, R.B., Marsick, R., Drotar, D., & Kodish, E.D. (2000). Diagnosis, disclosure, and informed consent: Learning from parents of children with cancer. Journal of Pediatric Hematology/Oncology, 22, 3-12.

Manne, S., Miller, D., Meyers, P., Wollner, N., Steinherz, P., & Redd, W.H. (1996). Depressive symptoms among parents of newly diagnosed children with cancer: A 6-month follow-up study. Children's Health Care, 25, 191-209.

Martinson, I.M., Leavitt, M., Liu, C., Armstrong, V., Hornberger, L., Zhang, J., et al. (1999). Comparison of Chinese and Caucasian families caregiving to children with cancer at home: Part I. Journal of Pediatric Nursing, 14, 99-109.

Martinson, I.M., Liu-Chiang, C.Y., & Yi-Hua, L. (1997). Distress symptoms and support systems of Chinese parents of children with cancer. Cancer Nursing, 20, 94-99.

Martinson, I.M., Xiao-Yin, S., & Yi-Hua, L. (1993). The impact of childhood cancer on 50 Chinese families. Journal of Pediatric Oncology Nursing, 10, 13-18.

McCray, N.D. (1997). Psychosocial and quality of life issues. In S. Otto (Ed.), Oncology nursing (3rd ed., pp. 817-834). St. Louis, MO: Mosby Year Book.

McGrath, P. (2001a). Findings on the impact of treatment for childhood acute lymphoblastic leukemia on family relationships. Child and Family Social Work, 6, 229-237.

McGrath, P. (2001b). Identifying support issues of parents of children with leukemia. Cancer Practice, 9, 198-205.

Mercer, M., & Ritchie, J.A. (1997). Tag team parenting of children with cancer. Journal of Pediatric Nursing, 12, 331-341.

Mu, P., Ma, F., Hwang, B., & Chao, Y. (2002). Families of children with cancer: The impact on anxiety experienced by fathers. Cancer Nursing, 25, 66-73.

Mu, P., Ma, F., Ku, S., Shu, H., Hwang, B., & Kuo, B.I. (2001). Families of Chinese children with malignancy: The factors impact on mother's anxiety. Journal of Pediatric Nursing, 16, 287-295.

Neil-Urban, S., & Jones, J.B. (2002). Father-to-father support: Fathers of children with cancer share their experience. Journal of Pediatric Oncology Nursing, 19, 97-103.

Noojin, A.B., Causey, D.L., Gros, B.J., Bertolone, S., & Carter, B.D. (1999). The influence of maternal stress resistance and family relationships on depression in children with cancer. Journal of Psychosocial Oncology, 17, 79-97.

Peace, G., O'Keeffe, C., Faulkner, A., & Clark, J. (1992). Childhood cancer: Psychosocial needs. Are they being met? Journal of Cancer Care, 1(1), 3-13.

Pyke-Grimm, K.A., Degner, L., Small, A., & Mueller, B. (1999). Preferences for participation in treatment decision making and information needs of parents of children with cancer: A pilot study. Journal of Pediatric Oncology Nursing, 16, 13-24.

Santacroce, S. (2002). Uncertainty, anxiety, and symptoms of post-traumatic stress in parents of children recently diagnosed with cancer. Journal of Pediatric Oncology Nursing, 19, 104-111.

Sawyer, M., Antoniou, G., Toogood, I., Rice, M., & Baghurst, P. (2000). Childhood cancer: A 4-year prospective study of the psychological adjustment of children and parents. Journal of Pediatric Hematology/Oncology, 22, 214-220.

Shapiro, J., Perez, M., & Warden, M.J. (1998). The importance of family functioning to caregiver adaptation in mothers of child cancer patients: Testing a social ecological model. Journal of Pediatric Oncology Nursing, 15, 47-54.

Sharan, P., Mehta, M., & Chaudhry, V.P. (1999). Psychiatric disorders among parents of children suffering from acute lymphoblastic leukemia. Pediatric Hematology and Oncology, 16, 43-47.

Shields, G., Schondel, C., Barnhart, L., Fitzpatrick, V., Sidell, N., Adams, P., et al. (1995). Social work in pediatric oncology: A family needs assessment. Social Work in Health Care, 21(1), 39-54.

Skolin, I., Hursti, U.K., & Wahlin, Y.B. (2001). Parents' perception of their child's food intake after the start of chemotherapy. Journal of Pediatric Oncology Nursing, 18, 124-136.

Sloper, P. (1996). Needs and responses of parents following the diagnosis of childhood cancer. Child: Care, Health, and Development, 22, 187-202.

Sterken, D.J. (1996). Uncertainty and coping in fathers of children with cancer. Journal of Pediatric Oncology Nursing, 13, 81-88.

Tarr, J., & Pickler, R.H. (1999). Becoming a cancer patient: A study of families of children with acute lymphocytic leukemia. Journal of Pediatric Oncology Nursing, 16, 44-50.

Tebbit, P. (2001). Definitions of supportive and palliative care. Progress in Palliative Care, 9, 187-189.

Williams, H.A. (1992). Comparing the perception of support by parents of children with cancer and by health professionals. Journal of Pediatric Oncology Nursing, 9, 180-186.

Wills, B.S. (1999). The experiences of Hong Kong Chinese parents of children with acute lymphocytic leukemia. Journal of Pediatric Nursing, 14, 231-238.

Yeh, C. (2001). Religious beliefs and practices of Taiwanese parents of pediatric patients with cancer. Cancer Nursing, 24, 476-482.

Yeh, C. (2002). Gender differences of parental distress in children with cancer. Journal of Advanced Nursing, 38, 592-606.

Yeh, C.H., Lee, T.T., Chen, M.L., & Li, W. (2000). Adaptational process of parents of pediatric oncology patients. Pediatric Hematology and Oncology, 17, 119-131.

Yiu, J.M., & Twinn, S. (2001). Determining the needs of Chinese parents during the hospitalization of their child diagnosed with cancer: An exploratory study. Cancer Nursing, 24, 483-489.