Creating a CD-ROM Program for Cancer-Related Patient Education

Patricia Agre

James Dougherty

Jane Pirone

ONF 2002, 29(3), 573-580. DOI: 10.1188/02.ONF.573-580

Purpose/Objectives: To describe the process of developing a cancer-related patient and family education CD-ROM program and initial evaluation results.

Data Sources: Published research, theory, practice, and personal experience.

Data Synthesis: CD-ROM programs can be far more comprehensive than the booklets and videotapes used more commonly in patient education. Developing CD-ROM programs requires funding, organizational skills, access to content experts, and a team composed of people who have the varied skills required for a finished multimedia product. The time frame for CD-ROM production is often longer than that of other patient-education formats. Published reports and this institution's experience confirm that patients accept this medium. Evaluation to date suggests that CD-ROMs may be more useful to patients and their families than any other single information source.

Conclusions: CD-ROM technology is more expensive than videotapes and booklets, but it allows for greater depth of content and may satisfy a broader range of educational needs than other media. Funding often can be obtained through foundations and with unrestricted educational grants from pharmaceutical companies.

Implications for Nursing: Nurses can lead multidisciplinary teams to produce CD-ROMs for their patient populations. These programs can be used before a patient has a first consultation to introduce a cancer or treatment and anytime during cancer diagnosis and treatment. They can reinforce one-on-one teaching or provide greater depth of content than ever could be provided in individualized teaching sessions. They can facilitate patients' self-directed learning and may allow nurses and doctors to teach on a different level. These programs also can complement patients' Internet searches either by creating a solid foundation for further investigation or by confirming the reliability of information gained through a variety of Internet sources.

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    References

    Consoli, S., Said, M., Jean, J., Menard, J., Plouin, P., & Chatellier, G. (1995). Benefits of a computer-assisted education program for hypertensive patients compared with standard education tools. Patient Education and Counseling, 26, 343--347.

    Douglas, T., Mann, N., & Hodge, A. (1998). Evluation of preoperative patient education and computer-assisted patient instruction. Journal of Spinal Disorders, 11(1), 29--35.

    Flood, A., Wennberg, J., Nease, R., Fowler, F., Ding, J., & Hynes, L. (1996). The importance of patient preference in the decision to screen for prostate cancer. Journal of General Internal Medicine, 11, 342--349.

    Galbraith, M. (Ed.). (1991). Facilitating adult learning: A transactional process. Melbourne, FL: Krieger.

    Glasgow, R., LaChance, P., Toobert, D., Brown, J., Hampson, S., & Riddle, M. (1997). Long-term effects and costs of brief behavioral dietary intervention for patients with diabetes delivered from the medical office. Patient Education and Counseling, 32, 175--184.

    Gustafson, D., Hawkins, R., Boberg, E., Pingree, S., Serlin, R., Graziano, F., et al. (1999). Impact of a patient-centered, computer-based health information/support system. American Journal of Preventive Medicine, 16(1), 1--9.

    Gustafson, D., Wise, M., McTavish, F., Taylor, J., Wolberg, W., Stewart, J., et al. (1993). Development and pilot evaluation of a computer-based support system for women with breast cancer. Journal of Psychosocial Oncology, 11(4), 69--93.

    Huss, K., Huss, R., Squire, E., Carpenter, G., Smith, L., Salata, K., et al. (1992). Computer education for asthmatics: What effects? Journal of Nursing Care Quality, 6(3), 57--66.

    Huss, K., Salerno, M., & Huss, R. (1991). Computer-assisted reinforcement of instruction: Effects on adherence in adult atopic asthmatics. Research in Nursing and Health, 14, 259--267.

    Kasper, J., Mulley, A., & Wennberg, J. (1992). Developing shared decision-making programs to improve the quality of health care. Quality Review Bulletin, 18, 183--190.

    Knowles, M. (1977). A history of the adult education movement in the United States (2nd ed.). Melbourne, FL: Krieger.

    Lo, R., Lo, B., Wells, E., Chard, M., & Hathaway, J. (1996). The development and evaluation of a computer-aided diabetes education program. Australian Journal of Advanced Nursing, 13(4), 19--27.

    McTavish, F., Gustafson, D., Owens, B., Wise, M., Taylor, J., Apantaku, F., et al. (1994). CHESS: An interactive computer system for women with breast cancer piloted with an under-served population. Journal of the American Medical Informatics Association, 1, 599--603.

    Mercer, Z., Chiriboga, D., & Sweeney, M. (1997). Using computer technology with older adults: A pilot study on advanced directives. Gerontology and Geriatrics Education, 18(1), 61--76.

    Petersen, M. (1988). Measuring patient satisfaction: Collecting useful data. Journal of Nursing Quality Assurance, 2(3), 25--35.

    Rogers, E.M. (1983). Diffusion of innovations. New York: Free Press.

    Stipek, D. (1988). Motivation to learn: From theory to practice. Boston: Allyn and Bacon.

    Tibbles, L., Lewis, C., Reisine, S., Rippey, R., & Donald, M. (1992). Computer assisted instruction for preoperative and postoperative patient education in joint replacement surgery. Computers in Nursing, 10, 208--212.